|  | | Related Knowledge Base Chapters | |  |
| Guidelines and Best Practices | |  |
| Policy Reports, Papers, and Briefs | |  |
| Online Books and Chapters |  |  | Palliative Care and HIV Chapter from the Guide for HIV/AIDS Clinical Care, S. Coffey, Editor. July 2012. |  |  |  | A Clinical Guide to Supportive and Palliative Care for HIV/AIDS Joseph F. O'Neill, Peter A. Selwyn, Helen Schietinger. HIV/AIDS Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services, 2003 edition. A comprehensive 600+ page online book covering management of advanced HIV disease, psychosocial and ethical issues, and end of life care. |  |
|  |
| Newsletter Articles | |  |
| Provider Education and Training | |  |
| Clinician Support Tools |  |  | Chronic Pain Toolkit AIDS Education and Training Centers, Primary Care Management for the HIV/AIDS Provider Workgroup, 2008. Contents include: Algorithms, diagnostic and management of chronic pain in people with HIV. |  |  |  | Karnofsky Performance Scale Hospice Patients Alliance. n.d. The Karnofsky Performance Scale Index allows patients to be classified as to their functional impairment. This can be used to compare effectiveness of different therapies and to assess the prognosis in individual patients. The lower the Karnofsky score, the worse the survival for most serious illnesses. |  |
|  |
| Program Management Materials |  |  | Palliative Care Toolkit: Improving Care From the Roots Up in Resource-Limited Settings Vicky Lavy, Charlie Bond, and Ruth Wooldridge. Help the Hospices and The Worldwide Palliative Care Alliance. 2008. |  |  |  | International Association for Hospice and Palliative Care Palliative Care Manual International Association for Hospice and Palliative Care (IAHPC), 2004. |  |  |  | A Community Health Approach to Palliative Care for HIV/AIDS and Cancer Patients in Sub-Saharan Africa World Health Organization. 2004. This monograph describes the current status and achievements of a joint project among five countries - Botswana, Ethiopia, United Republic of Tanzania, Uganda, Zimbabwe - and the WHO. This report intends to guide the national health planners and public health programme managers within and outside Africa to conduct their own situation analysis and assessment of palliative care needs for HIV/AIDS and cancer patients. |  |  |  | AIDS: Palliative Care UNAIDS Technical Update, October 2000. Also available in: Spanish, French, and Russian. |  |
|  |
| Links |  |  | African Palliative Care Association APCA's mission is to promote and support affordable and culturally appropriate palliative care throughout Africa. APCA's goal is to support the scaling-up of palliative care provision across Africa through a culturally appropriate public health approach that strives to balance quality with coverage.
|  |  |  | American Academy of Pain Medicine Organization for physicians practicing the specialty of pain medicine in the United States.
|  |  |  | American Pain Foundation A patient information, education, and advocacy organization serving people with pain.
|  |  |  | American Pain Society A multidisciplinary educational and scientific organization dedicated to serving people in pain.
|  |  |  | The Center for Palliative Care Education An educational resource center and training program whose mission is to improve palliative care for people with HIV/AIDS by increasing the knowledge, skills, and comfort level of clinicians to provide such care.
|  |  |  | End of Life / Palliative Education Resource Center Medical College of Wisconsin. Online resource center for healthcare professionals. Extensive library and links.
|  |  |  | Growth House: Hospice and Home Care Good source for general information on hospice and home care.
|  |  |  | Hospice Foundation of America A nonprofit organization that promotes hospice care and works to educate professionals and the families they serve in issues relating to caregiving, terminal illness, loss and bereavement.
|  |  |  | Hospice Net A site for patients, families, and caregivers, with information on hospice services, caregiving, bereavement, and talking with children.
|  |  |  | International Association for Hospice and Palliative Care Mission is to increase the availability and access to high quality hospice and palliative care for patients and families throughout the world.
|  |  |  | National Hospice and Palliative Care Organization Information and resources for professionals and the public. Includes hospice locator feature.
|  |  |  | National Prison Hospice Association Promotes hospice care for terminally ill inmates.
|  |  |  | Promoting Excellence in End-of-Life Care Robert Wood Johnson Foundation project that provides funding, direction, and technical assistance to innovative demonstration projects in end-of-life care settings and addressing particular challenges to existing models of hospice and palliative care.
|  |
|  |
|