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Palliative Care: Related Resources
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Related Knowledge Base Chapters
Symptom Management Guidelines
Lisa Capaldini. July 2004.
Care of HIV Infection in the Developing World: Related Resources
Community-Based Care in the Developing World: Related Resources
Guidelines and Best Practices
Integrated Management of Adolescent & Adult Illness: Interim Guidelines for First Level Facility Health Workers--Acute Care
WHO, October 2005. [PDF, 2MB] Also in French. Other modules include:
bullet.gifChronic HIV Care with ARV Therapy
[PDF, 863K] Also in French. See also the Participant Manual for the WHO Basic ART Clinical Training Course based on this module.
bullet.gifGeneral Principles of Good Chronic Care
[PDF, 149K] Also in French.
bullet.gifPalliative Care: Symptom Management and End-of-Life Care
[PDF, 915K] Also in French.
bullet.gifCaregiver Booklet: A Guide For Patients, Family Members and Community Caregivers
[PDF, 368K]
Policy Reports, Papers, and Briefs
HIV/AIDS Palliative Care Guidance #1 for the United States Government in-Country Staff and Implementing Partners
President's Emergency Plan for AIDS Relief, Office of the U.S. Global AIDS Coordinator. February 3, 2006.
Palliative Care in Sub-Saharan Africa: An Appraisal
Richard Harding, Irene Higginson. Department of Palliative Care and Policy, King's College London, 2004. [PDF, 1.75MB]
Online Books and Chapters
Palliative Care and HIV
Chapter from the Guide for HIV/AIDS Clinical Care, S. Coffey, Editor. July 2012.
A Clinical Guide to Supportive and Palliative Care for HIV/AIDS
Joseph F. O'Neill, Peter A. Selwyn, Helen Schietinger. HIV/AIDS Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services, 2003 edition. A comprehensive 600+ page online book covering management of advanced HIV disease, psychosocial and ethical issues, and end of life care.
Newsletter Articles
Palliative Care and Home Based Care for HIV
HIV and AIDS Treatment in Practice, Aidsmap, November 24, 2003.
Provider Education and Training
Paediatric Palliative Care Manual for Home-Based Carers
Nicola Willis, Marcus McGilvray, Lisa McNally, Robert Pawinski, University of KwaZulu-Natal. May 2005.
Palliative Care for People with HIV/AIDS: A Curriculum and Teaching Resource for Medical Educators
Northwest AIDS Education and Training Center. February 2001. Video.
Clinician Support Tools
Chronic Pain Toolkit
AIDS Education and Training Centers, Primary Care Management for the HIV/AIDS Provider Workgroup, 2008. Contents include: Algorithms, diagnostic and management of chronic pain in people with HIV.
Karnofsky Performance Scale
Hospice Patients Alliance. n.d. The Karnofsky Performance Scale Index allows patients to be classified as to their functional impairment. This can be used to compare effectiveness of different therapies and to assess the prognosis in individual patients. The lower the Karnofsky score, the worse the survival for most serious illnesses.
Program Management Materials
Palliative Care Toolkit: Improving Care From the Roots Up in Resource-Limited Settings
Vicky Lavy, Charlie Bond, and Ruth Wooldridge. Help the Hospices and The Worldwide Palliative Care Alliance. 2008.
International Association for Hospice and Palliative Care Palliative Care Manual
International Association for Hospice and Palliative Care (IAHPC), 2004.
A Community Health Approach to Palliative Care for HIV/AIDS and Cancer Patients in Sub-Saharan Africa
World Health Organization. 2004. This monograph describes the current status and achievements of a joint project among five countries - Botswana, Ethiopia, United Republic of Tanzania, Uganda, Zimbabwe - and the WHO. This report intends to guide the national health planners and public health programme managers within and outside Africa to conduct their own situation analysis and assessment of palliative care needs for HIV/AIDS and cancer patients.
AIDS: Palliative Care
UNAIDS Technical Update, October 2000. Also available in: Spanish, French, and Russian.
Links
African Palliative Care Association
APCA's mission is to promote and support affordable and culturally appropriate palliative care throughout Africa. APCA's goal is to support the scaling-up of palliative care provision across Africa through a culturally appropriate public health approach that strives to balance quality with coverage.
American Academy of Pain Medicine
Organization for physicians practicing the specialty of pain medicine in the United States.
American Pain Foundation
A patient information, education, and advocacy organization serving people with pain.
American Pain Society
A multidisciplinary educational and scientific organization dedicated to serving people in pain.
The Center for Palliative Care Education
An educational resource center and training program whose mission is to improve palliative care for people with HIV/AIDS by increasing the knowledge, skills, and comfort level of clinicians to provide such care.
End of Life / Palliative Education Resource Center
Medical College of Wisconsin. Online resource center for healthcare professionals. Extensive library and links.
Growth House: Hospice and Home Care
Good source for general information on hospice and home care.
Hospice Foundation of America
A nonprofit organization that promotes hospice care and works to educate professionals and the families they serve in issues relating to caregiving, terminal illness, loss and bereavement.
Hospice Net
A site for patients, families, and caregivers, with information on hospice services, caregiving, bereavement, and talking with children.
International Association for Hospice and Palliative Care
Mission is to increase the availability and access to high quality hospice and palliative care for patients and families throughout the world.
National Hospice and Palliative Care Organization
Information and resources for professionals and the public. Includes hospice locator feature.
National Prison Hospice Association
Promotes hospice care for terminally ill inmates.
Promoting Excellence in End-of-Life Care
Robert Wood Johnson Foundation project that provides funding, direction, and technical assistance to innovative demonstration projects in end-of-life care settings and addressing particular challenges to existing models of hospice and palliative care.