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Links: Treatment Access and Advocacy
Treatment Access and Advocacy Organizations
Access Mechanisms
See Also
HIV InSite Knowledge Base
Treatment Access
Care of HIV Infection in the Developing World
Links
Drug Information
Policy and Programmatic Responses
U.S. Health Care Financing
Treatment Access and Advocacy Organizations
Access in Developing World
Global Network of People Living with HIV/AIDS
(GNP+) Includes contact information for regional networks.
Health Action International
Global network of health, development, consumer, and other public interest groups in over 70 countries working for a more rational use of medicinal drugs.
Health Global Access Project
(HealthGAP) Website features published press articles, research, education, and online discussion on issues of global treatment access.
Journalists Against AIDS Nigeria
(JAAIDS) In 2002, launched an advocacy campaign to support access to affordable treatment and care for Nigerians living with HIV/AIDS. Web site includes links to reports, news, and electronic discussion forum.
Médecins Sans Frontières
(MSF) An international humanitarian aid organization that provides emergency medical assistance to populations in danger in more than 80 countries. Advocates for access to HIV medications.
Treatment Action Campaign
Based in South Africa; highlights disparities and problems in accessing HIV/AIDS treatment and campaigns for their elimination.
UNICEF Supply Division
Analyzes sources and prices of selected drugs and diagnostics for people living with HIV/AIDS.
Access in Europe and the United States
ACT UP/Philadelphia
AIDS Action
Promotes research and undertakes educational activities related to HIV/AIDS treatment and prevention.
AIDS Treatment Data Network
(ATDN) Community-based organization providing treatment education and counseling services. Site includes clinical trials information, facts sheets, and treatment access resources.
European AIDS Treatment Group
(EATG) Pan-European organization that seeks to ensure rapid access to state-of-the-art treatment and information, and to enable people with HIV and their advocates to provide maximum input into the drug testing and approval processes.
National Alliance of State and Territorial AIDS Directors (NASTAD)
NASTAD is a nonprofit national association of state health department HIV/AIDS program directors who have programmatic responsibility for administering HIV/AIDS health care, prevention, education, and supportive services programs funded by state and federal governments.
National Association of People with AIDS
(NAPWA) U.S. advocacy organization that focuses on community development and training as well as treatment and prevention education.
National Minority AIDS Council
(NMAC) Organizes regional training on treatment issues, conducts needs assessments on treatment issues in communities of color, and provides technical assistance to community-based organizations on treatment education for clients and service providers.
National AIDS Treatment Advocacy Project
(NATAP) Educates diverse communities on the newest HIV treatments and advocates on treatment and policy issues.
Project Inform
Disseminates treatment information and advocates for enlightened regulatory, research, and funding policies. Site features extensive treatment information.
Treatment Action Group
(TAG) Advocates for larger and more efficient AIDS research efforts, both public and private, as well as access to HIV/AIDS treatment and information.
Drug Pricing and Intellectual Property Rights
Consumer Project on Technology
Focuses on intellectual property rights and health care, electronic commerce, and competition policy. Focus is on antiretrovirals.
Management Sciences for Health
Publishes the International Drug Price Indicator Guide and manages the International Network for Rational Use of Drugs (INRUD).
World Health Organization, Essential Drugs and Medicines Policy
Seeks to provide global guidance on essential drugs and medicines, and works with countries, at their request, to implement national drug policies to ensure equity of access to essential drugs, drug quality and safety, and rational use of drugs.
World Trade Organization
Includes page on Trade-related Aspects of Intellectual Property Rights (TRIPS).
Access Mechanisms
Developing World (Donation Programs)
AID for AIDS
Distributes unused HIV medications to Latin America. Web site in English and Spanish. Also site for AID For AIDS Peru (in Spanish).
DrugDonations.org
Sponsored by an NGO consortium, this site contains information about drug donation to developing countries, including donation guidelines, good donation practices, and raising awareness of need. Site in English, Dutch, French. German, Italian, Russian, and Spanish.
United States
Access Project
The Access Project collects and distributes information about medications available for HIV and AIDS through Medicaid, AIDS Drug Assistance Programs (ADAPs), and national pharmaceutical industry patient assistance/expanded access programs. This site is an excellent source of information about treatments.
Expanded Access, Compassionate Use, and Treatment IND Programs
Programs that allow patients limited access to promising experimental treatments before they have been given full approval by the U.S. Food and Drug Administration. (Updated January 2008)
Needy Meds.com
A comprehensive website providing information on pharmaceutical company-sponsored patient assistance programs by generic drug name, brand drug name, program list, and company list (including companies without patient assistant programs).