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Community-Based Care in the Developing World: Related Resources
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Updates
Caring From Within: Key Findings and Policy Recommendations on Home-based Care in Zimbabwe
Health & Development Networks and the Southern Africa HIV and AIDS Information Dissemination Service, January 2009. [PDF, 688K]
Related Knowledge Base Chapters
Palliative Care of Patients with HIV
Eva Chittenden and Alison Ludwig. July 2008.
Antiretroviral Treatment Monitoring in Developing Countries: Related Resources
Care of HIV Infection in the Developing World: Related Resources
Journal Articles
Task shifting of antiretroviral delivery from health care workers to persons living with HIV/AIDS: clinical outcomes of a community-based program in Kenya.
Selke HM, Kimaiyo S, Sidle JE, Vedanthan R, Tierney WM, Shen C, Denski CD, Katschke AR, Wools-Kaloustian K. J Acquir Immune Defic Syndr. 2010 Dec 1;55(4):483-90. Includes commentary from the UCSF Institute for Global Health.
Changes in programmatic outcomes during 7 years of scale-up at a community-based antiretroviral treatment service in South Africa
Nglazi MD, Lawn SD, Kaplan R, Kranzer K, Orrell C, Wood R, et al. J Acquir Immune Defic Syndr. 2010; 56(1):e1-8. Includes commentary from the UCSF Institute for Global Health.
Nurse versus doctor management of HIV-infected patients receiving antiretroviral therapy (CIPRA-SA): a randomised non-inferiority trial
Sanne I, Orrell C, Fox MP, Conradie F, Ive P, Zeinecker J, et al. Lancet. 2010 Jul 3;376(9734):33-40. Includes commentary from the UCSF Institute for Global Health.
Results of a community-based antiretroviral treatment program for HIV-1 infection in Western Uganda
Kipp W, Konde-Lule J, Saunders LD, Alibhai A, Houston S, Rubaale T, et al. Curr HIV Res. 2010 Mar;8(2):179-85 Includes commentary from the UCSF Institute for Global Health.
HIV testing rates and outcomes in a South African community, 2001-2006: implications for expanded screening policies
April MD, Walensky RP, Chang Y, et al. J Acquir Immune Def Syndr. 2009;51:310-6. Includes commentary from the UCSF Institute for Global Health.
Increasing uptake of HIV testing and counseling among the poorest in sub-Saharan countries through home-based service provision
Helleringer S, Kohler HP, Frimpong JA, Mkandawire J. J Acquir Immune Defic Syndr 2009 Apr 6. Includes commentary from the UCSF Institute for Global Health.
Two-year virologic outcomes of an alternative AIDS care model: evaluation of a peer health worker and nurse-staffed community-based program in Uganda
Chang LW, Alamo S, Guma S, et al. J Acquir Immune Defic Syndr 2009;50:276-82. Includes commentary from the UCSF Institute for Global Health.
Community-based follow-up for late patients enrolled in a district-wide programme for antiretroviral therapy in Lusaka, Zambia
Krebs DW, Chi BH, Mulenga Y, Morris M, Cantrell RA, Mulenga L, et al. AIDS Care 2008;20:311-17. Includes commentary from the UCSF Institute for Global Health.
Randomized control trial of peer-delivered, modified directly observed therapy for HAART in Mozambique
Pearson CR, Micek MA, Simoni JM, Hoff PD, Matediana E, Martin DP et al. J Acquir Immune Defic Syndr. 2007 Oct 1;46(2):238-44. Includes commentary from the UCSF Institute for Global Health.
Implementing antiretroviral therapy in rural communities: the Lusikisiki model of decentralized HIV/AIDS care
Bedelu M, et al. J Infect Dis. 2007 Dec; 196(Suppl 3):S464-S468. No abstract available. Includes commentary from the UCSF Institute for Global Health.
Evaluation of a workplace HIV treatment programme in South Africa
Charalambous S, Innes C, Muirhead D, Kumaranayake L, Fielding K, Pemba L, et al. AIDS 2007 Jul;21 Suppl 3:S73-8. Includes commentary from the UCSF Institute for Global Health.
Nursing care of AIDS patients in Uganda
Fournier B, Kipp W, Mill J, Walusimbi M. J Transcult Nurs 2007 Jul;18(3):257-64. Includes commentary from the UCSF Institute for Global Health.
Home-Based Antiretroviral Care is Associated with Positive Social Outcomes in a Prospective Cohort in Uganda
Apondi R, Bunnell R, Awor A, Wamai N, Bikaako-Kajura W, Solberg P, Stall RD, Coutinho A, Mermin J. J Acquir Immune Defic Syndr. 2007 Jan 1;44(1):71-6. Includes commentary from the UCSF Institute for Global Health.
Adherence to Antiretroviral Therapy in a Home-Based AIDS Care Programme in Rural Uganda
Weidle PJ, Wamai N, Solberg P, Liechty C, Sendagala S, Were W, Mermin J, Buchacz K, Behumbiize P, Ransom RL, Bunnell R. Lancet. 2006 Nov 4;368(9547):1587-94. Includes commentary from the UCSF Institute for Global Health.
A Controlled Study of an HIV/AIDS/STI/TB Intervention with Traditional Healers in KwaZulu-Natal
Peltzer K, Mngqundaniso N, Petros G. AIDS Behav 2006 Nov;10(6):683-90. Includes commentary from the UCSF Institute for Global Health.
Guidelines and Best Practices
Guidance for Nurse Prescription and Management of Antiretroviral Therapy
Family Health International, December, 2008.
Coordinating with Communities: Guidelines on the Involvement of the Community Sector in the Coordination of National AIDS Responses
This packet consists of two books, action cards, and a facilitator's guide. International Council of AIDS Service Organization (ICASO), and the International HIV/AIDS Alliance, 2007.
Pain and Symptom Control in the Cancer and/or AIDS Patient in Uganda and Other African Countries
Hospice Africa, April 2006. [PDF, 1.8MB] Also available in French.
Integrated Management of Adolescent & Adult Illness: Interim Guidelines for First Level Facility Health Workers--Acute Care
WHO, October 2005. [PDF, 2MB] Also in French. Other modules include:
bullet.gifChronic HIV Care with ARV Therapy
[PDF, 863K] Also in French. See also the Participant Manual for the WHO Basic ART Clinical Training Course based on this module.
bullet.gifGeneral Principles of Good Chronic Care
[PDF, 149K] Also in French.
bullet.gifPalliative Care: Symptom Management and End-of-Life Care
[PDF, 915K] Also in French.
bullet.gifCaregiver Booklet: A Guide For Patients, Family Members and Community Caregivers
[PDF, 368K]
Standard Operating Procedures for Antiretroviral Therapy
Family Health International, August 2005.
Guidelines for Establishing Community-Led Antiretroviral Treatment through a Human Capacity Development Approach
The Salvation Army, April 2005. [PDF, 1.3MB]
A Community Mobilization Handbook for HIV/AIDS Prevention, Care and Mitigation: Save the Children USA Malawi Experience
Scaling Up HIV/AIDS Interventions Through Expanded Partnerships (STEPs), Save the Children Federation USA, 2003. [PDF, 11MB]
Facilitator's Guide for Community Home Based Care Orientation Workshop in Myanmar
Strengthening Nurses and Midwifes for HIV/AIDS, Myanmar Nurses Association, National AIDS Program, Division of Nursing, Department of Health, UNAIDS, UNICEF, WHO, 2003. [PDF, 342K]
National Home-Based Care Programme and Service Guidelines [Kenya]
National AIDS/STD Control Programme, Kenya Ministry of Health, May 2002. [PDF, 960K]
Living Well with HIV/AIDS
Food and Agriculture Organization, WHO, 2002. A manual with a global perspective on nutritional care and support for people living with HIV/AIDS. Also in Spanish and French.
National Guideline on Home-Based Care/Community-Based Care [South Africa]
Department of Health, Republic of South Africa, December 2001.
Strengthening of Home Based Care in Myanmar: Implementation Guide for Establishment of Community Home Based Care in Pilot Areas in Myanmar, July 2001
Myanmar Nurses Association, National AIDS Program, Division of Nursing, Department of Health, UNAIDS, UNICEF, WHO, July 2001. [PDF, 201K]
How Can We Help? Approaches to Community-Based Care
Child Protection Society, Zimbabwe, July 1999. [PDF, 224K]
Policy Reports, Papers, and Briefs
Caring From Within: Key Findings and Policy Recommendations on Home-based Care in Zimbabwe
Health & Development Networks and the Southern Africa HIV and AIDS Information Dissemination Service, January 2009. [PDF, 688K]
Community-Based AIDS Prevention and Care In Africa: Building On Local Initiatives, Case Studies from Five African Countries
Population Council, January 2009.
Involving the Community in Responding to TB/HIV
Open Society Institute. April 2008. [PDF, 100k]
Exploring the Role of Family Caregivers and Home-Based Care Programs in Meeting the Needs of People Living With HIV/AIDS
Horizons Research Update, Population Council, May 2005. [PDF, 379K] See also Programmatic Implications of a Cost Study of Home-Based Care Programs in South Africa.
An Assessment of Community- Based Health Financing Activities in Uganda
Yann Derriennic, Katherine Wolf, Paul Kiwanuka-Mukiibi. Partners for Health Reformplus, February 2005. [PDF, 186K]
"Our Hearts are Willing, But..." Challenges of Elderly Caregivers in Rural Kenya
Milka Juma, Tom Okeyo, George Kidenda. Horizons/Population Council, December 2004. [PDF, 118K]
The Gendered Burden of Home-Based Caregiving
Olagoke Akintola. Health Economics and HIV/AIDS Research Division, University of KwaZulu-Natal, August 2004. [PDF, 51K]
The Involvement of People Living with HIV/AIDS in Community-based Prevention, Care and Support Programs in Developing Countries: A Multi-Country Diagnostic Study
Christophe Cornu, Kathy Attawell. Population Council, International HIV/AIDS Alliance, July 2003. [PDF, 1.2MB]
Expanding the Care Continuum For HIV/AIDS: Bringing Carers into Focus
Jessica Ogden, Simel Esim, Caren Grown. International Center for Research on Women, June 2004. [PDF, 712K]
Multisectoral Responses to HIV/AIDS: A Compendium of Promising Practices from Africa
Academy for Educational Development, USAID, The Mitchell Group, April 2003. [PDF, 1.7MB]
Community Home-Based Care in Resource-Limited Settings: A Framework for Action
Cross Cluster Initiative on Home-Based Long-Term Care, Non-Communicable Diseases and Mental Health, and the Department of HIV/AIDS, Family and Community Health, WHO, 2002. [PDF, 520K]
Microfinance and HIV/AIDS: It's Time to Talk
Jill Donahue, Displaced Children & Orphans Fund and War Victims Fund, USAID, November 2000. [PDF, 143K]
Newsletter Articles
CDC Pioneers Family-Based "Preventive Care" in Uganda as Framework for Rollout
Theo Smart. HIV and AIDS Treatment in Practice, Aidsmap, March 3, 2005.
Provider Education and Training
Accompagnateurs Curriculum
A set of training materials for community health workers, including a training manual, participant manual, flip charts and slides. Partners in Health, January 2008.
Adherence Support Worker Training Materials
Family Health International, July 2007.
Community Home-Based Care for People and Communities Affected by HIV/AIDS: Training Course and Handbook for Community Health Workers
Pathfinder International, October 2006.
Community Engagement for Antiretroviral Treatment: A Training Manual for Community-Based Organisations, Non-Governmental Organisations and People Living with HIV in Africa
International HIV/AIDS Alliance. December 2005. [PDF, 1.8MB]
Training Manual: Community Mobilisation and Empowerment for Improved Access to Care, Support and Treatment
John Snow International, Southern African AIDS Trust. September 2004. [PDF, 867K]
How to Mobilize Communities for Health and Social Change
Johns Hopkins University/Center for Communication Programs, 2003.
Guidelines on First Aid and HIV/AIDS
International Federation of Red Cross and Red Crescent Societies, 2001. [PDF, 224K]
Home Care of the Terminally Ill
Island Hospice, Voluntary Services Overseas, n.d. [PDF, 82K]
Program Management Materials
Procurement & Supply Management Toolbox
A central repository for a wide range of health-related procurement supply management tools. The Toolbox facilitates quick selection and access to tools in the public domain. WHO, 2008.
WHO List of Prequalified Medicinal Products
A database with information on formulation, origin, and maker for TB, malaria and HIV medications preapproved by the WHO. 2008.
The PIH Guide to the Community-Based Treatment of HIV in Resource-Poor Settings (2nd Ed.)
Partners In Health, August 2006. [PDF, 1.6MB] Also available in French.
Tools Together Now! Participatory Tools to Facilitate Mobilising Communities for HIV/AIDS
International HIV/AIDS Alliance. December 2005. [PDF, 3MB]
Information Management Challenges and Opportunities for Community-Based Organizations Serving People Living With HIV/AIDS
Teresa Crawford, William Lester. EngenderHealth, Open Society Institute, December 2004. [PDF, 1.4MB]
Children and Home-Based Care: Integrating Support for Children Affected by HIV and AIDS into Home-Based Care Programmes
Southern African AIDS Trust, August 2004. [PDF, 487K]
A Participatory Rapid Appraisal Tool for the Evaluation of AIDS Home Based Care Programmes
Gauteng Health Department, UNFPA/DFID/EU Partnerships for Health Programme, 2004. [PDF, 971K] See also the accompanying spreadsheets. [MS Excel, 177K]
Care for Children Infected and Those Affected by HIV/AIDS: A Handbook for Community Health Workers
Save the Children UK, 2003. [PDF, 2MB]
Mobilising the Community: A PILLARS Guide
Isabel Carter. Partnership in Local Language Resources, Tearfund, 2003. [PDF, 1.1MB]
Handbook on Access to HIV/AIDS-Related Treatment: A Collection of Information, Tools and Resources for NGOs, CBOs and PLWHA Groups
UNAIDS, May 2003. [PDF, 2MB]
Friends in Need: A Handbook for the Care of Orphans in the Community
Marion Derbyshire. Viva Network, 2002. [PDF, 3.8 MB] Evaluates three models of church/community-based orphan care in Zimbabwe, including the FACT/FOCUS Programme, Bethany Project, and ZOE.
Community Home-Based Care for People Living with HIV/AIDS
International Federation of Red Cross and Red Crescent Societies, 2002. [PDF, 481K]
Integrated Management of Adolescent & Adult Illness: Interim Guidelines for First Level Facility Health Workers--Acute Care
WHO, October 2005. [PDF, 2MB] Also in French. Other modules include:
bullet.gifChronic HIV Care with ARV Therapy
[PDF, 863K] Also in French. See also the Participant Manual for the WHO Basic ART Clinical Training Course based on this module.
bullet.gifGeneral Principles of Good Chronic Care
[PDF, 149K] Also in French.
bullet.gifPalliative Care: Symptom Management and End-of-Life Care
[PDF, 915K] Also in French.
bullet.gifCaregiver Booklet: A Guide For Patients, Family Members and Community Caregivers
[PDF, 368K]
Standard Operating Procedures for Antiretroviral Therapy
Family Health International, August 2005.
Expanding the Care Continuum For HIV/AIDS: Bringing Carers into Focus
Jessica Ogden, Simel Esim, Caren Grown. International Center for Research on Women, June 2004. [PDF, 712K]
Procurement & Supply Management Toolbox
A central repository for a wide range of health-related procurement supply management tools. The Toolbox facilitates quick selection and access to tools in the public domain. WHO, 2008.
WHO List of Prequalified Medicinal Products
A database with information on formulation, origin, and maker for TB, malaria and HIV medications preapproved by the WHO. 2008.
The PIH Guide to the Community-Based Treatment of HIV in Resource-Poor Settings (2nd Ed.)
Partners In Health, August 2006. [PDF, 1.6MB] Also available in French.
HIV, Health, and Your Community: A Guide for Action
Reuben Granich, Jonathan Mermin. The Hesperian Foundation, 2006. Translations of the 2001 edition of this book are available in Arabic, Iban, Telugu, Urdu, and Vietnamese.
Healthy Living: A Counseling Guide for Health Workers on Opportunistic Infections, Antiretroviral Therapy (ART), Management of ART Side Effects
Family Health International, 2003. A collection of low-literacy guides and brochures in English and Swahili.
What Do You Know about HIV/AIDS?
FHI/Egypt, n.d. [PDF, 2.3MB] One in a series of Arabic-language booklets about home-based care for people living with HIV/AIDS. Other booklets include: Caring for Yourself When Living with HIV/AIDS, Caring for You and Your Child When Living with HIV/AIDS, and Nutritional Support for People Living with HIV/AIDS.
Principles of Community Engagement
U.S. Centers for Disease Control and Prevention, 1997.
The Brief Pain Inventory
Charles S. Cleeland. Pain Research Group, M.D. Anderson Cancer Center, 1991. [PDF, 100K] An 8-page patient questionaire designed to assess pain. A condensed version is also available. [PDF, 90K]
Karnofsky Performance Scale Index
Hospice Patients Alliance, n.d. This scale can be used to compare effectiveness of different therapies and to assess the prognosis of individual patients.
Patient and Community Education
HIV, Health, and Your Community: A Guide for Action
Reuben Granich, Jonathan Mermin. The Hesperian Foundation, 2006. Translations of the 2001 edition of this book are available in Arabic, Iban, Telugu, Urdu, and Vietnamese.
Lend A Caring Hand: Tips for Home Health Care
Izaskun Gaviria. United Nations International Research and Training Institute for the Advancement of Women, December 2005. [PDF, 3.5MB]
Healthy Living: A Counseling Guide for Health Workers on Opportunistic Infections, Antiretroviral Therapy (ART), Management of ART Side Effects
Family Health International, 2003. A collection of low-literacy guides and brochures in English and Swahili.
Hope At Home: Caring for Family With AIDS (Part 1)
World Relief Corporation, 2000. [PDF, 390K] See also Part 2. [PDF, 312K]
Cambodia Self-Care Series
IMPACT/Cambodia, Family Health International's Asia-Pacific Division, n.d. Four illustrated books offering practical advice for people living with HIV and their caregivers.
What Do You Know about HIV/AIDS?
FHI/Egypt, n.d. [PDF, 2.3MB] One in a series of Arabic-language booklets about home-based care for people living with HIV/AIDS. Other booklets include: Caring for Yourself When Living with HIV/AIDS, Caring for You and Your Child When Living with HIV/AIDS, and Nutritional Support for People Living with HIV/AIDS.
Links
Strategies for Hope
Strategies for Hope produces books, videos, and other training materials aimed at promoting informed, effective, community-based approaches to HIV/AIDS, gender, and sexual health, particularly in sub-Saharan Africa. Resources may be ordered from the web site. Organizations working in sub-Saharan Africa may request free copies.